This website (the “Website”) is the website of Open Orphan plc (“Open Orphan plc”, “us” or “we”), a company registered in England under company number 07514939 and with its registered address at Queen Mary BioEnterprises Innovation Centre, 42 New Road, London, E1 2AX, England.
The pages on the Website are published by Investis Limited (“Investis) on behalf of Open Orphan plc.
Accessing the Website
Neither Investis nor Open Orphan plc guarantee that the Website, or any content on it, will always be available or be uninterrupted. Access to the Website is permitted on a temporary basis. We may suspend, withdraw, discontinue or change all or any part of the Website without notice. We will not be liable to you if for any reason the Website is unavailable at any time or for any period.
Your login details
Information we provide on the Website
Share and company information
The information contained in the Website is not an invitation to invest in shares or other securities, or any other products or services or otherwise deal in these or enter into a contract with Open Orphan plc or any other company. The information provided should not be relied upon in connection with any investment decision. You should always seek appropriate professional advice in relation to such. The past performance of Open Orphan plc or any other company referred to on the Website cannot be relied upon as a guide to its future performance. The price of shares and the income derived from them can go down as well as up and investors may not recoup the amount originally invested. Any reference to any product or service which has been or may be provided by Open Orphan plc or any other company does not amount to a promise that such product or service will be available at any time. Changes to or improvements in such products or services may be made at any time without notice.
Intellectual property rights
Copyright in the design and architecture of the Website is owned by Investis. Open Orphan plc owns the copyright in the content published on the Website except where otherwise indicated by a third party's proprietary notice. Images, trademarks and brands are also protected by other intellectual property laws and may not be reproduced or appropriated in any manner without written permission of their respective owners. Unless specifically prohibited by a notice published on any page, you may make a print copy of such parts of the Website as you may reasonably require for your own personal use provided that any copy has attached to it any relevant proprietary notices and/or disclaimers. All other use is prohibited.
We do not guarantee that the Website will be secure or free from bugs or viruses. You are responsible for configuring your information technology, computer programmes and platform in order to access the Website. You should use your own virus protection software. You must not misuse the Website by knowingly introducing viruses, trojans, worms, logic bombs or other material which is malicious or technologically harmful. You must not attempt to gain unised access to the Website, the server on which the Website is stored, or any server, computer or database connected to the Website. You must not attack the Website via a denial-of-service attack or a distributed denial-of service attack. [Include the next sentence only if the company is based in the UK, otherwise delete it.] By breaching this provision, you would commit a criminal offence under the Computer Misuse Act 1990. [End of UK-only sentence – delete these notes from web page.] We will report any such breach to the relevant law enforcement ities, and we will cooperate with those ities by disclosing your identity to them. In the event of such a breach, your right to use the Website will cease immediately.
We are not responsible for the content of any other website from which you have accessed the Website or to which you may hyperlink from the website and cannot be held liable for any loss or damage you incur as a result thereof.
YOUR RIGHTS UNDER THE GDPR
You have rights under data protection law in relation to how Open Orphan uses your Personal Data. You may generally access your rights free of charge.
You can ask for access to the Personal Data we hold on you
You have the right to ask for all the Personal Data we have about you. When we receive a request from you in writing, we must give you access to all Personal Data we’ve recorded about you as well as details of the processing, the categories of Personal Data concerned and the recipients of the Personal Data.
We will provide the first copy of your Personal Data free of charge, but we may charge you a reasonable fee for any additional copies.
We cannot give you access to a copy of your Personal Data in some limited cases including where this might adversely affect the rights and freedoms of others.
You can ask to change Personal Data you think is inaccurate
You should let us know if you disagree with something included in your Personal Data.
We may not always be able to change or remove that information, but we’ll correct factual inaccuracies and may include your comments in the record to show that you disagree with it.
You can ask to delete Personal Data (right to be forgotten)
In some circumstances you can ask for your Personal Data to be deleted, for example, where:
- your Personal Data is no longer needed for the reason that it was collected in the first place
- you have removed your consent for us to use your Personal Data (where there is no other lawful basis for us to use it)
- there is no lawful basis for the use of your Personal Data
- deleting the Personal Data is a legal requirement
Where your Personal Data has been shared with others, we will do what we can to make sure those using your Personal Data comply with your request for erasure.
Please note that we cannot delete your Personal Data where:
- we are required to have it by law
- it is used for freedom of expression
- it is used for public health purposes
- it is used for scientific or historical research or statistical purposes where deleting the Personal Data would make it difficult or impossible to achieve the objectives of the processing
- it is necessary for legal claims.
You can ask us to limit what we use your Personal Data for
You have the right to ask us to restrict what we use your Personal Data for where:
- you have identified inaccurate information, and have told us of it
- where we have no legal reason to use that Personal Data but you want us to restrict what we use it for rather than erase it altogether
When Personal Data is restricted it can’t be used other than to securely store the Personal Data and with your consent to handle legal claims and protect others, or where it’s for important public interests.
You can ask to have your Personal Data moved to another provider (data portability)
You have the right to ask for your Personal Data to be given back to you or for it to be provided to another service provider of your choice in a commonly used format. This is called data portability.
This right only applies if we’re using your Personal Data with consent and if decisions were made by a computer and not a human being. It does not apply where it would adversely affect the rights and freedoms of others.
You can make a complaint
You have the right to lodge a complaint with the local supervisory ity for data protection in the EU member state where you usually reside, where you work or where you think an infringement of data protection law took place.
AMENDMENTS TO THIS PRIVACY NOTICE
We will post any changes on the Website and when doing so will change the effective date at the top of this Privacy Statement. Please make sure to check the date when you use our services to see if there have been any changes since you last used those services. If you are not happy with any changes that we have made please contact us.
In some cases, we may provide you with additional notice of changes to this Privacy Statement, such as accompanying the annual member booklet. We will always provide you with any notice in advance of the changes taking effect where we consider the changes to be material.
OUR CONTACT INFORMATION
Please contact us if you have any questions about this Privacy Statement or Personal Data we hold about you:
- by email at: DPO@cdzkteco.com
- or write to us at:
Data Protection Officer,
18 Fitzwilliam Place,
The Data Protection Commission in Ireland may be contacted using the contact details below if you have any concerns or questions about the processing of your Personal Data.
Lo-Call No: 1890 252 231
Telephone Number: 057 8684800
Postal Address: 21 Fitzwilliam Square South, Dublin 2, D02 RD28
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24 Fashion Street